As the Chair of the All-Party Parliamentary Group for Rare, Genetic and Undiagnosed Conditions, I understand the strong concerns many of my constituents have about the sensitive issues involved in Non-invasive Prenatal Testing (NIPT), and I appreciate that, with the correct support, most people with Down’s syndrome can lead healthy, active and more independent lives. However, members of the Government do not, by convention, sign any Early Day Motions, as doing so likely violates the Ministerial Code’s rules on collective responsibility.
The screening programme run by the NHS in England offers women more choice in their pregnancy. Women opt into screening, and it is not required as part of routine antenatal care. The programme clearly states that women have the choice not to undergo the test. They can then make an informed decision about participating in the programme based upon their personal values and beliefs.
Ministers and the NHS in all four countries are advised about screening policy by the UK National Screening Committee. As of January 2016, the Committee recommended introducing NIPT screening for Down’s syndrome. They came to this decision after a thorough review of scientific and cost evidence related to NIPT. The Committee’s review can be found on the following webpage: http://legacy.screening.nhs.uk/fetalanomalies
As a member of the Women and Equalities Select Committee, I welcome the UK NSC’s important recommendation on NIPT. I know that the Government is currently considering whether this could be introduced as part of the NHS FASP.